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東京公害患者と家族の会

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Pollution arbitration
日本語のページ
Pollution arbitration
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My asthma experience

Forty years have passed since I developed bronchial asthma, but now I think that the treatment for asthma has changed dramatically. At the time of the onset of illness, asthma was painful at the time of the attack, so I was dealing with going to the hospital at the time of the attack. He was prescribed medicines such as bronchodilators, but he did not understand the role of the medicine and did not drink when he was in good condition. Several years after the onset of illness, I had regular breathing during repeated seizures, and when I got my luggage or climbed the stairs, my heart was having a hard time. Seizures also became serious and I was hospitalized to continue injections and infusions.

 

First turning point

After I started to inhale inhaled steroids, I was relieved of my daily stuffiness. Until that time I was inhaling the bronchodilator when my tightness became strong, but again I used it again after the effective time, so I used it again, but the effective time became shorter and it was a vicious cycle. The daily use of inhaled steroids has reduced the amount of breathlessness and seizures.

Second turning point

The spread of informed consent. Until then, I was taking and inhaling the medicine prescribed by the doctor as I was told, but with the explanation of the effects and side effects of the medicine, I changed my mind to face the disease. In particular, I learned that the side effects of taking steroids were diverse, and I started taking them carefully.

 
Third turning point

With the asthma guidelines in place, you can receive certain treatment from any hospital. In the experience of 40 years ago, the response varied depending on the doctor when having a medical checkup at night. In addition, I was able to reconfirm that asthma prevention was more important than seizure treatment. There are steps according to the symptoms, which also serve as a guide for improvement.

Biggest turning point

Accredited by the "Tokyo Air Pollution Medical Expense Subsidy Program", which was launched in 2008, we were released from the burden of medical expenses and were able to try more effective medicines. She has been given subcutaneous injections (very expensive) of the latest asthma medication and her symptoms have improved dramatically. It becomes self-pay from April 2018 to 6,000 yen a month and it is a little hard, but considering the burden of long-term medical expenses and suffering from asthma attacks, I want you to apply the medical expenses subsidy program to all patients , I sincerely hope.

 
What is the cause of asthma?

I think, why did you get this sick? How can I get rid of it?

There is no answer.

For a long time, I believed that my asthma was allergic, and I continued to treat allergies (such as hyposensitization therapy) by believing in the doctor's words and books, but I did not see any improvement.

The cause of asthma is said to be allergy, tobacco, air pollution, etc. but I think that there are few patients who know the cause of their asthma.

I was unbelievable when I heard that air pollution (car exhaust) could cause asthma. However, moving the house off the road certainly reduced the frequency of attacks. If you set up an air purifier at home and you don't go out, you won't get a seizure, but with this you can't live.

I was convinced that air pollution along the road was one of the causes. Asthma may be worsened by various factors acting in combination.

 

The current state of asthma!

In current medical treatment, it is said that it is difficult to cure adult asthma. Some patients remit early with appropriate treatment. We want to tell based on experience that medical expenses subsidy program that anyone can receive appropriate medical treatment is necessary so that medical expenses burden does not become obstacle.

 

Now what i think

There are a large number of asthmatic patients. Symptoms may range from mild to severe, but none of them can be cured. Medical treatment continues for many decades, and the medical expenses over the lifetime are heavy. Because there are many patients! Because the cause of the onset is unknown!

Asthmatics, are you responsible for your asthma?

Do you want to feel safe and continue treatment?

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